I am supporting someone with dementia

 

I am supporting someone with dementia

 

The tabs below offer more information and advice for people living with dementia and those supporting someone with dementia.

If you have any suggestions, or are aware of any additional useful content or information please contact gail.cardy@westsuffolkccg.nhs.uk

 


Local:

Dementia Together continues to operate, available seven days a week for continuous support for those worried about memory issues, people living with dementia, and their carers. Dementia Together Navigators can complete a detailed assessment over the phone, or by video, offering support, education and a listening ear.

The service also provides carers with information regarding a range of creative activities that they can engage in with people living with dementia; linking service users to local community networks, which are offering help with shopping, collecting prescriptions and welfare calls. 

Call: 08081 688 000

Email: SRYC.DementiaTogether@nhs.net

Dementia Together is also offering four free virtual meet-ups a week starting from 4th May. These meet-up’s will give people time to chat, exercise the brain, get creative and most importantly, have fun.

Monday, 12-12.30, lunch and chit chat
Wednesday, 11-11.40, managing your wellbeing
Wednesday, 14.00-14.40, reminiscing and crafty moments
Friday, 11.00-11.40, quiz of the week

Find the out more about these virtual Dementia Together meet-ups

Suffolk Dementia Forum Facebook page

The Suffolk Dementia Forum brings together those living with dementia, their carers, voluntary and statutory services. It offers a place to have your voice and share your concerns especially at the moment, as well as highlighting the services across Suffolk that can support you through your individual journeys.

Suffolk Dementia Forum – if you would like to join this group please email gail.cardy@westsuffolkccg.nhs.uk

 

Suffolk Dementia Covid-19 Sub-Group brings together members of the Suffolk Dementia Forum to ensure that those living with dementia, their carers, voluntary sector, providers and other statutory providers.

There are conversations across Suffolk on a weekly basis via Microsoft Teams every Monday afternoon from 2 – 3pm beginning Monday 11th May. 

We want to hear your voice and ensure that everyone contributes to develop services and working in partnership during this challenging time and in the future.  Please email gail.cardy@westsuffolkccg.nhs.uk if you are interested in becoming involved.

 

Halesworth Dementia Carers Fund 

 

National:

Alzheimer’s Society resources

Coronavirus support from Dementia Connect

Coronavirus and supporting a person with dementia at home

 

Easy Read versions of useful information:

Coronavirus Easy-Read Online

 Advocacy (Easy Read)

 

Carers:

Suffolk Family Carers:

For advice, information, and support for family carers

  • Information Hub – Running as normal and can be reached via email (hello@suffolkfamilycarers.org ), phone 01473 835477 or live chat. If calling, please note we are experiencing a higher volume of calls than normal. The information Hub will be available by Live Chat and Email only between 5pm & 8pm on Tuesdays
  • Carers Assessments  – Undertaking virtual / telephone assessments to discuss and explore your needs as a carer
  • 1:1’s – Appointments will be carried out by telephone or video conversations.
  • GP Drop-in Sessions – Drop-in sessions at all GP Surgeries are cancelled until further notice
  • Community Connecter Motorhome: Cancelled until further notice
  • Programmes and Workshops – Cancelled until further notice
  • Moving & Handling – Cancelled until further notice
  • Talk & Support – Running as normal.
  • The View Drop-in Centre – Closed to visitors until further notice
  • Reception Unit 9 – Closed to visitors until further notice
  • Family Carer Groups – Future groups cancelled until further notice. Alternative Virtual groups are being established where possible

Although we unable to provide face to face sessions our friendly staff are available to provide information, advice and guidance or just offer a reassuring voice through this difficult time.   Please contact our Information Hub on 01473 835477, email us on hello@suffolkfamilycarers.org or use our live chat facility found at the bottom of our website

 

Emotional Wellbeing and Mental Health:

First Response 24/7 Mental Health crisis line: Tel: 0808 196 3494.
 

First Response is a 24/7 helpline offering immediate advice, support and signposting for people with mental health difficulties.

 

Care and Support

Adult Social Care (Customer First): Tel: 0808 800 4005

Email: customer.first@suffolk.gov.uk

Home but Not Alone Service

The telephone number for those in need of practical help is freephone 0800 876 6926 and will be staffed from 9am to 5pm, seven days a week. 

 

Health advice and information

Referral Process for SALT

Referral Form

Communicating with people with dementia and memory problems

Eating, drinking and swallowing problems in dementia

Dementia Together continues to operate, available seven days a week for continuous support for those worried about memory issues, people living with dementia and their carers. Dementia Together Navigators can complete a detailed assessment over the phone, or by video, offering support, education and a listening ear.

The service also provides carers with information regarding a range of creative activities that they can engage in with people living with dementia; linking service users to local community networks, which are offering help with shopping, collecting prescriptions and welfare calls. 

Call: 08081 688 000       Email: SRYC.DementiaTogether@nhs.net

 

Suffolk Family Carers:

  • Information Hub – Running as normal and can be reached via email (hello@suffolkfamilycarers.org), phone 01473 835477, or live chat. If calling please note we are experiencing a higher volume of calls than normal. The information Hub will be available by Live Chat and Email only between 5pm & 8pm on Tuesdays
  • Carers Assessments  – Undertaking virtual / telephone assessments to discuss and explore your needs as a carer
  • 1:1’s – Appointments will be carried out by telephone or video conversations.
  • GP Drop-in Sessions – Drop-in sessions at all GP Surgeries are cancelled until further notice
  • Community Connecter Motorhome: Cancelled until further notice
  • Programmes and Workshops – Cancelled until further notice
  • Moving & Handling – Cancelled until further notice
  • Talk & Support – Running as normal.
  • The View Drop-in Centre – Closed to visitors until further notice
  • Reception Unit 9 – Closed to visitors until further notice
  • Family Carer Groups – Future groups cancelled until further notice. Alternative Virtual groups are being established where possible

Although we unable to provide face to face sessions our friendly staff are available to provide information, advice and guidance or just offer a reassuring voice through this difficult time.   Please contact our Information Hub on 01473 835477, email us on hello@suffolkfamilycarers.org or use our live chat facility found at the bottom of our website

 

Halesworth Dementia Carers Fund 

Other useful information for carers

Leeds and York Partnership NHS Foundation Trust “Caring for Someone with Dementia at Home: A resource pack for carers”

Communicating with people with dementia and memory problems

Coughing and choking advice 

Choking advice from St Johns Ambulance

Eating, drinking and swallowing problems in dementia

 

Having a back-up or contingency plan setting out what will happen to the person you care for in the event of an emergency (e.g. care breakdown), is strongly recommended.  See https://www.carersuk.org/search/planning-for-emergencies and https://www.suffolk.gov.uk/care-and-support-for-adults/caring-for-someone/family-carers-emergency-plan/ for more information around the importance of, and how to arrange, for the completion of a Family Carers Emergency Plan.

In addition, the Herbert Protocol is a national scheme used by Suffolk Police and other agencies which encourages family carers and care providers to compile useful information in advance which could be used in the event of a vulnerable adult going missing.  Please see the following web page for a leaflet explaining the benefits, and the form template under advice for carers, family and friends on https://www.suffolk.gov.uk/care-and-support-for-adults/keep-well-and-active/dementia/

Herbert Protocol leaflet

Herbert Protocol form

 

 

Please see details of a free service with immediate 24/7 online enquiry and referral system for relatives, carers and health professionals supporting people living with Dementia provided by Dementia Support UK

 

Dementia Support UK: Connect, Consult

‘A listening ear and invaluable support at the time of greatest need’.  Care home professionals have welcomed a new service for people living with dementia in care homes as enquiries to Dementia Support UK: Connect, Consult demonstrate that lockdown measures are having a detrimental effect on the health and wellbeing of people living with dementia, their carers and loved ones. Urgent support is needed.

Funded by Innovate UK, and provided by HammondCare, this free service provides immediate support with a 24/7 online enquiry and referral system for relatives, carers and health professionals. It offers an opportunity to access extra support and expert guidance to help carers cope with behaviours and symptoms which worsened during the pandemic. 

Read the article

 

CAMAS

From the w/c 18 May 2020 CMAS will be taking referrals again, this is based on  NHSE advice and guidance. Please follow the referral protocol and restriction criteria below

Community Memory Assessment Service referral protocol during COVID-19 restrictions

  • We will accept referrals even if routine bloods cannot be performed at this time and will ask that these be completed at a later date.
  • We have no access to CT/MRI head scans currently so cannot complete our full assessment.
  • Therefore, we would suggest that if patients are reporting mild memory loss without a change in their day to day functioning that they be referred at a later date when the service has fully reopened.
  • For those patients with a more moderate presentation and definite loss of functionality we may be able to provide an unspecified dementia diagnosis without a CT/MRI scan.
  • We are currently conducting telephone assessments and will be introducing video assessments in the near future, with hopefully some clinics to follow.

 

Dementia Together

Dementia Together have not stopped taking referrals for those with memory concerns, living with dementia and their carers the CCG encourages GPs to refer and to this service for additional emotional and wellbeing support

  • Dementia Together will continue to be operating within the restrictions of the Coronavirus outbreak and the UK Government, Public Health England guidelines
  • The helpline will continue to be available 7 days a week for continuous support throughout this difficult time.
  • Dementia Together Navigators will also be able to complete a detailed assessment over the phone offering support, education and a listening ear to you throughout this difficult time.

Call Free on: 08081 688 000

Monday to Friday, 9am - 6pm.

Saturday, Sunday & Bank Holidays, 10am - 4pm.

 

COVID-19 Advice note for Care Providers supporting people experiencing dementia (Suffolk County Council 07/05/2020)

 

East of England Region Older People’s Mental Health & Dementia Resources to support systems in responding to Covid

 

Managing behaviour that challenges 

 

Prevent deconditioning through being Active at Home

A new booklet for older adults available to local authorities and partners to prevent deconditioning through being Active at Home

 

Social Care Institute for Excellence, Dementia in Care Homes and COVID-19, Supporting Residents, Supporting Carers and Supporting Homes. This quick guide aims to help carers better support those living with dementia during the coronavirus (COVID-19) pandemic. The guide covers clinical situations to illustrate some challenges, including understanding signs of COVID-19, helping residents with confusion, managing behavioural challenges as well as end-of-life care. Please also see answers to frequently asked questions within scie.org.uk/care-providers/coronavirus-covid-19/questions-answers/dementia-care-homes

 

Speech and Language Therapy

Links to resources / activity ideas:

 

Maintaining Activities for Older Adults during Covid-19 

 

Active at Home Public Health England booklet

General dementia awareness information for volunteers and others

The Dementia Friends website contains lots of useful information to promote a general understanding and awareness of dementia.  This includes access to online videos and sessions to become a Dementia Friend.

 

Volunteers:

Innovations in Dementia Community Interest Company (CIC) has produced four short videos to inform volunteers about supporting people with dementia which can be downloaded for free under ‘tips to share with a volunteer’. They are for the many thousands of volunteers who are supporting people living in the community, whether by keeping in touch or delivering shopping and prescriptions. Many of these volunteers may not have met people living with dementia before and may be nervous about how to communicate and build a relationship. Innovations in Dementia CIC have also produced some useful checklists for volunteers.

Webinar – Volunteer Toolkit

The SSP’s website has recently been refreshed and contains a wealth of information for professionals, volunteers and individuals in response to the pandemic, as well as clear signposts to many local organisation’s information. Issues like reporting and getting support for domestic abuse, to important changes in legislation, and supporting individuals and volunteers.  You can access our COVID-19 pages here.

How to spot and respond to signs of abuse and neglect in adults - The safeguarding framework and intro video

For Practitioners and Providers: Safeguarding training is still available through online learning sessions on CPD Online. Please search for safeguarding courses to book on.

Suffolk County Council safeguarding information: Protecting people at risk of abuse

Social Care Institute for Excellence guidance: Safeguarding adults with dementia during the Covid-19 crisis and Safeguarding in faith-based organisations

Training information (tailored to volunteers): Community Action Suffolk training COVID-19

Primary Care guidance: NHS Specialty Guide Virtual-Working and Coronavirus

GMC UK ethical-guidance/ethical-hub/remote-consultations